The Gift of Someday: Rylee's New Heart
I've been here for five months because I'm waiting on a heart. People kind of like just walked in and then they said they found out they got a heart. The nurses over on the fourth floor, when they all heard that a heart was available, they all went in Rylee's room and they was all singing.
(Singing) I got my new heart. We're just kind of relieved she's finally gonna get a heart. She's been through so much. I think she was just so happy and so scared like everybody else. Rylee and I have sort of have developed a special bond over the last few months.
She actually ended up with sort of a rare disease in a heart transplant patient. Basically the only out for her is another transplant. I've known Rylee almost her whole life.
It's her fourth chest operation. It's her second heart. Once the transplant starts we're looking at somewhere between a six to an eight hour operation. I think she hated for us to leave but it was time for us to go. I said you'll be okay. I said I love you. You feel comfortable knowing that she's in their hands. We got confidence in them, in the heart transplant team.
The first 24 to 96 hours really sets the tone for the rest of her life basically. We do this better than anybody else. We have a lot of things that the heart transplant physicians, the ICU team and the surgical team are on the lookout for. And beyond that we have to start the immune system suppression so that her body tolerates the new heart. It went by awful fast. Dr.
McConnell came out and said everything went great. Rylee was doing great. This is the second time he has saved her life.
The day is today that we've waited for. It's her someday. She'll walk out here with her new heart.
I don't know what its gonna be like. I might cry. What's the first thing you're gonna do when you get to go home? I'm gonna see my dog Lucky I'm gonna go Walmart maybe and buy spaghetti tacos. It's amazing to see how she's bounced back. Her energy levels higher so she's just doing real good. That's a testament to a couple of good things. One is Rylee herself. She has just the best spirit.
But there's the other aspect of things. We know our families and patients to a level that I've not seen in other programs. I say this to every family we meet in the heart transplant program. Our families become part of our larger heart transplant family so that means we know and love Rylee for the rest of her life. She said she was going to miss everybody here and we was trying to explain to her that well, they're all gonna miss you too but that's what they all worked for was to get you better so you could go home. I got my new heart.
I got my someday.
I've been here for five months because I'm waiting on a heart. People kind of like just walked in and then they said they found out they got a heart. The nurses over on the…By: NationwideChildrens