I was diagnosed in 2007 a day before my husband's birthday and is funny because we were actually at the hospital a friend of ours had had a baby and then I was downstairs in emergency - my friend was like where's Sarah? She's downstairs, she's got a brain tumour it was crazy, it was very crazy and yeah, my little boys were four and one and half at the time when you're told you've got as little as three months left when they're so tiny it's really tough but I kind of refused to give into it I think I had a surgery in Canberra where they scanned me and said it's a very malignant tumour you're gonna need surgery but from the time of going into hospital and then going through all this shock news and diagnosis to having surgery was about 3 or 4 days so there is no time to adjust to anything even before I got sick I'm just a happy person and I have fun now and laugh with my friends and we just have a great time I've got a great network. My family's just amazing So I think when something happens to or a friend or family member and it strikes a chord that there is no cause, there's no reason Sarah would get this horrible disease. It's totally it was totally random, surreal For my friends in the maternity ward "Sarah's got a brain tumour?" and different friends have told me how they got the news and they've all just said "What?" there's no rhyme or reason.
Babies get it, old men get it it's a totally random disease that strikes anybody and so I think friends have kind of gone if that can happen to her, who's you know, just a normal easy-going person let's get behind her. I think have seen how I've responded and have thought I hope I, if something like that happened to me, I hope I respond like that. Care is so tough on on those people in your family. I mean my mum and my step dad and my sister, everyone kind of moved in for a certain period in 2007, so they each took responsibility for different aspects of my life because I couldn't do it you know I had to manage all my medication all the appointments I had to stop, well I stopped work, but I also had to keep working you know the bills still come in. When you're out of your mind and you can't concentrate and can't remember, it's really dangerous I do honestly wonder how people without that network, I mean that's a blessing, not a common thing that such a strong network can come you know know there were ties, you know they could come and sort of temporarily drop their lives to help, but that's a thing. You're forever changed but as my mum said, which really resonated with me it's so fortunate that the cancer took the organisational side of your brain and left Sarah And I, you know, I am too. I'm the same but better in a way because I'm just so grateful for everything.
People need to know the devastation. Ninety-five percent of people don't make it past a year and a half. It's a terrible disease and not enough people know it. How can it be such a terrible statistic that kills so many people from babies to old men and no one knows? The event's on Daniere's and my b'day but the event came about from the deaths of my three friends, the first three friends that I made. People say, and it's a really lovely thing to hear, but you can't..
It's hard with Brain Storm because it's for these friends but it's my face and my voice. It's not for me, which I've struggled with But I'm like (laughs) It's like me talking all the time It's not for me, but I kind of have this faith as everything has fallen in my path, it's meant to be. I think the events in my life Kokoda, speaking at Charlie's ball in 2008, becoming involved with BTAA and having opportunities to speak about depression and care coordinators and learn about them myself they're all things that have fallen in my path, so I feel I'm alive for a reason and the reason is to give a voice to these people and to make a difference.
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