Retinopathia Pigmentosa Behandlung- RP Treatment - FIRATLI CLINIC (Eng subtitles)
Hello. Good night. My name is Ayşe Selek I live in Switzerland since 16 years and my unfortunate year was 1999 maybe you remember 11 august 1999 solar eclipse this day was an eclipse for me I had an appointment in an eye-hospital by doctor and he made a diagnose that I couldn't imagine what it meant for me On this day I warned my children to be careful about this solar eclipse and I gave them sunglasses to cover their eyes and I went to this eye clinic on that day after 3 hours long eye examination I have been told that I was going to be blind on some day Yes; it wasn't a jog that's the truth I had Retinitis Pigmentosa thats what happened to me...my life was destroyed i had 2 children alone mother i had to work and look after my children it wasn't easy but I made it because I'm here.
I didn't give up thanks to my son who always RP-pages investigated without telling me anything told me : mother there is a treatment available for your eyes That day I was going to die for joy immediately I went home We'll look through together. There is a doctor in Turkey in Istanbul and his name is Dr.Osman Firatli and he will treat your disease I told him to come home. I cried until he came I have so cried that I can't explain. I have thought about this all 10 years.
What have I done in this time and I thought the first year with the diagnose 1999 when I was diagnosed. By the way 2 months later I took my children for the control as I knew it was a genetic disease. Thanks God they were healthy. Then I told myself. Okey How will it be now Of course I am a worrier I don't give up there were times I said okey ayşe let yourself go, there is nothing wrong to spend some tears no ; ayşe had to continue fighting first year I had been reported as unable to work I wasn't allowed to work anymore I had to close my dance studio everything that I had done with my own hand, I had to give up in just one year That was the worst for me I closed my studio but didn't rent it for 2 years; i had to fight. I wanted to make an education as dance teacher but they told me : no its very stressful.
We can't support you What I had to do was to stay at home and wait for the day when I was going to be blind my ophthalmologist Dr.Eckenberger have examined me every year. And I asked him every year. Is there any chance? Is there any treatment available? How far is the science? Every time he told me no miss selek. No chance RP can't be treated. If there was anything, he would be the first one to know. Then I told him: Okey , I heard of something.
My son told me about this. So he told me: noo its not possible then he told me that I had to organize my living. I had to learn blind rules... I had to learn to walk with blind stick, I had to learn braille I told him its over, I didn't want him as my ophthalmologist anymore then I informed my family doctor about it so i told my family doctor, there is a treatment in Istanbul my family doctor told me then: okey, but it will not be supported financially as it's not switzerland but in turkey alternative medicine was only supported in switzerland and neighbor countries then I asked him what do I have to do should I give up. This treatment was waiting for me in Istanbul Thanks god, with the help of my family doctor, my social workers, blind society, my friends I have made it. I'm here in Istanbul in clinic of Dr. Osman Firatli and I spent lovely 2 months wonderful I lived here for 2 months and today I'm finished with the treatment. And I also have the result!! I see 80 percent more then before and I will continue with the treatment because I'm convinced with this treatment..
...that I could have back my visual acuity to 100 percent I will come back next year and make 2 months treatment.
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