Including Students with Albinism (Chapter 6 of 6)

By: Perkins School for the Blind

SUSAN DALTON: First of all, I just understand how painful it is for a parent to, you know, just to be in a social situation and to see your child stared at or gawked at. You know, some people, it's just unbelievable what you see. But then I think back to when my kids were born and when my daughter was diagnosed with albinism, I had no clue what it was. So I didn't, you know, know anything about it, and I had to learn. So I think of people, you know, seeing someone with albinism.

They don't know, and sometimes the best approach is to just give them a little bit of education on it. "Well, this is why it happened, this is the way it is," and understand that they are just curious, and it is different, and if you can explain it in a way that will educate them, that they in turn can educate others, that, you know, hopefully people will be a little more sensitive, you know, to their future encounters of people. NARRATOR: In a series of video clips taken at a NOAH conference, we see adults and children with albinism renewing acquaintances and enjoying one another's company. DALTON: With albinism, I think that's one of the biggest helps, I think, for, you know, the children, the students, and even for the families, to meet other people who share the condition. When I see the children get together with NOAH, the National Organization for Albinism, when they have their conferences, it's such an interesting bond to see with these kids, and I've found with my children that they have such a unique friendship with other people with albinism that they don't share with their other friends. They talk about their vision, they joke about not seeing stuff, about not recognizing people, and talk about people touching their hair and things like that, that happens often.

And I think it's just been extremely helpful, you know, in my situation, to have that. Just as a parent to see that in the kids, to see that this is really neat for them to have that, to see adults who are successful adults and that are married and have children and things like that, that they may think may not happen for them. NARRATOR: Fade to black.

Including Students with Albinism (Chapter 6 of 6)

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