I have a FAKE brain tumor? | Pseudotumor Cerebri | Health Update
I know that title sounds like clickbait, but that is literally what the doctor told me and it's actually pretty bad. I have a condition called Psudeotumor Cerebri, which is basically all the symptoms of a brain tumor, except, you know... The brain tumor. It causes increased pressure in my skull which cause crippling headaches and it worsens my vision I know that sounds confusing, so let me try and explain it a little bit. Your skull is obviously a closed object. There isn't really much space for things there that don't belong.
So if there was say, something like a tumor there... That would move things around and make it a really tight fit in there. So that is similar to what's happening with me except there is no tumor. The increased pressure causes problems like dizziness headaches vision loss muscle weakness fatigue etc, etc.
All of which are symptoms I am suffering from. Last month I spent three weeks in and out of the hospital I got a CT Scan, an MRI scan, an MRV scan... A spinal tap, a blood patch, a week of bedrest... And so many IVs I still sort of feel like a junkie. It's ridiculous. I had already been suffering for a few months, but it is safe to say March was really hard on me.
Since they can't find a tumor in my head, the best option to treat this is by reducing the spinal fluid in my brain My neurologist, aka, my brain doctor was going to try this with medicine but she says my symptoms actually aren't as severe as most people with this condition. Which is relieving, but also sort of terrifying when you consider how destructive the symptoms I do have been to my daily life/ The pressure is causing damage to my optic nerve Which could take away the vision in my right eye permanently or even blind me if we can't get it under control I've actually lost quite a bit of vision in that eye over the past few months and I have to get fitted for glasses on Wednesday. So it's pretty scary. Treatment wise we're going to try Pain medicine for my really bad headaches Vitamins B2 and Magnesium for preventing them and physical therapy and weight loss Weight loss can sometimes alleviate some of the symptoms. And I had already lost 15 pounds and was exercising regularly before I developed this condition so I am a bit receive dot know that continuing on that path could potentially be a treatment in itself. I only have about 20 to 30 pounds to lose. I'm just going to make that a priority. I had to withdraw from school and quit my job.
Which was really demotivating. Not gonna lie. But I'm going back to school on Monday.
I'm really excited about that. Even though I'm not fully better, I've filed disability accommodations for my headaches and a financial aid suspension appeal. They put me on hold because I left last semester but I feel like this definitely qualifies under unusual and extraordinary circumstances? So I'm feeling pretty good about that. I am scared about going back to school without being a hundred percent. I know that I'm making positive steps towards being better.
It would be hard for me to feel like I'm improving if I wasn't working towards something so even though it's going to be hard I know it's going to be worth it in the long run. It isn't a brain tumor, so there's that. And there are ways to treat it even if they take time. It's just going to be something I'll have to overcome, something to work through. I'm looking at this like a good story. The main character in my novel also had to deal with a pretty severe illness to become a better, stronger person.
Maybe I'm taking my writing research a little too seriously. But at least I'll be writing from a place of truth and expierence when I tell her story there is always a next chapter. This is a point of conflict in my own story, but I have solid motivation and you guys are an excellent supporting cast. I know I can get better if I just keep turning the pages, so to speak. I'll see you very soon. I'm sorry for being absent and I'm sorry for not being very put together today but I feel like I have a pretty reasonable excuse. I'll see you next time. Oh god, this camera is too good.
It just zooms in on how terrible my face looks right now.
I know that title sounds like clickbait, but that is literally what the doctor told me and it's actually pretty bad. I have a condition called Psudeotumor Cerebri, which is basically…By: Lily Meade