Charlotte Figi and Zaki Jackson s Journey Treating Dravet & Doose Syndrome With Cannabis oil

Author: Pwits

Charlotte Figi & Zaki Jackson's journey Treating Dravet & Doose Syndrome with cannabis oil. Doctor Alan shackelford - Dr. Schakelford: I'm doctor Alan Shackelford. What you will see in this brief presentation is remarkable. It's unlike anything that I, in my 30 years of medical practice, have experienced and it's based on medical marijuana. You may have preconceived notions about what that means. But please watch the next few minutes with an open mind. I think you'll be astonished at what you learn.

"Charlotte's Web" - Paige Figi: So Charlotte has Dravet syndrome. It's a severe pediatric epilepsy. The seizures when they start with Dravet, they are status. They don't stop on their own. So they're 20 minutes or 30 minutes or longer. I think our first one is about a half hour. Every seizure after that for 2,5 years was a status seizure. Some were 4 hours long, 2 hours long.

At that point she's intubated in the ER, in a pediatric ICU. And medicine doesn't stop them, so that's um... We went through that for about 2,5 years. We got diagnosed at 2,5 years old.

A few times her heart has stopped during using these drugs. I've done CPR on her and a couple of those times you know... I just sort of let go off the fact that... Just to keep trying with her.

Charlotte Figi and Zaki Jackson s Journey Treating Dravet & Doose Syndrome With Cannabis oil

And I said my goodbyes to her. And as I'm doing CPR on her in the hospital, kind of prepared myself for the worst, and she's still here! But she's been through a lot to get to this point. The doctor, she heard her history of seizures at that time and then said, we have to pull this last medication she was on.

Her exact words were, we have reached the end of the line with medical options for Charlotte. I don't know what to tell you, there's really nothing else we can do. Now, that's when we met the Stanley's and as we got started on the CBD. After 6 months of, I really didn't think she would survive. The seizures at 300 seizures a week roughly, you know grandmal tonic-clonic seizures a week.

Just to put in light what 300 a week is. It's about 4 an hour, it's 1 seizure every 15 minutes. So sometimes it's every 5 minutes, it just never stops.

So to see her seizure free for a whole, for 7 days. She was 7 days, instantly. And we've been on it 9 months.

From that 300 seizures a week, she now has 0 to 1 tonic-clonic a week. So it's a greater than 99 percent seizure reduction. It's amazing.

It's absolutely amazing. To think that she wasn't going to survive. And look at her now, she has a life. During that time she lost the ability to walk, talk, eat and really just participate in life at all.

She couldn't do anything. She would just lie in my arms catatonic and I thought that was it. There just wasn't any life for a person. But here we are.

[Charlotte playing ballerina...] I was looking around for whatever I could find at any dispensary. I met the Stanley's. They started growing a strain with the highest CBD we've found in the world. And they named it after Charlotte for our succes. They've named it Charlotte's Web. That's what we've been using since for the last 8 months. - Josh Stanley: This particular plant has 0.5% THC & 17% CBD or cannabidiol, the nonpsychoactive ingredient. This plan is so important.

The CBD is literally stopping the progression of epilepsy. This plant right here's called Charlotte's Web. After our favorite little precious Dravet syndrome patient named Charlotte. And this is the reason we spent 2 years developing this plant. The world doesn't know about this yet. We are able to treat Charlotte through doctor approved channels. With no psychoactive effect for Charlotte or any of the patients that are able to take this CBD plant. That's why we call this the future of medical marijuana.

[Dokter Shackelford is examining Charlotte... ] - Matt Figi: A lot of people think when we tell them what we're giving our daughter. Their first reaction is, well is she getting high? No, that's not part of it at all. That's a common misconception.

- Paige: There's no psychoactive side effect, it's not psychotropic. So the CBD does seem to have other side effects that are... That have been amazing actually. - Matt Figi: Behavioral it has helped her. It helped her appetite. I can't think of any possible negative side effect that it has had.

She has just experiences a better quality of life all the way around because of it. - Dr. Shackelford: To be able to control seizures, the way this evidently is able to do. In a condition which results in absolute uncontrolled seizure activity is unprecedented.

- Paige Figi: Because of this medicine and this high CBD plant. We have our daughter back. We have a life back. She has her life back.

[Playing Charlotte - Laughter...] "Zaki's Journey" - Heather Jackson: Zaki has a rare catastrophic epilepsy diagnosis, called Doose syndrome. What that entails is lots of seizures every single day. Delayed development, autistic tendencies. That sort of things. In the end, we had tried every medication that is indicated. 17 treatments in all. Plus the ketogenic diet, which is a special diet for epilepsy.

So we really tried everything that we could. Really none of that helped, they would only make the seizures worse. The side effects of the medication of course are ridiculous. I pulled up some scrapbooks.

So you can see what Zaki looked like on steroïds. He doubled his weight. He was having, the EGG showed... The EEG is an electrical scan of the brainwaves.

It shows the seizure activity. And he was having 200 clonical seizures an hour. So there are 8 people in his room. Watching him seizure over and over. We were there about a week. They just confirmed the diagnosis and said that there was nothing else they could do. We were there to get the confirmation of what we were really dealing with.

But to get help, for them to help us again. They've said we've really tried everything in their bag of tricks that they had. It's not to be melodramatic.

But you are really in a fight for your child's life. We finally made that decision. Yes, we need to do this, we need to go ahead. Get his red card, start this whole process. We were at the end of our pharmaceutical rope, so to speak. Just that safety profile was unheard of.

I mean... I knew that I wasn't going to kill him giving him too much. Which I couldn't say for any other medication that we've tried. - Amanda Stanley: A very common and very obvious question is.

How do you administer cannabis to somebody like Zaki, Who is 9 years old! The first thing that pops into a person's mind is what do you do? Do you pop up a joint in the mouth, light the other end?" Absolutely not! It's either administered by capsules. Which they swallow or oral syringes. - Heather: Also I think people need to understand that everything is tested. So we know exactly the milligram dosages of CBD that we're giving, Cannabidiol. - Joel Stanley: Some people think that we're stopping their seizures by getting the kid high. Which isn't the case, it's actually quite a conundrum.

Because what's happening is... Is virtually all of the anti-epileptic drugs that are on the market are psychoactive. This cannabidiol extract is non-psychoactive. So we're replacing psychoactive medications with a non-psychoactive medication which happens to come from the cannabis.

So, that's kind of difficult for people to accept at first. [music - Zaki playing around in greenhouse... ] - Heather Jackson: It's brilliant. Because we have been able to come of his psychoactive drug, completely! At Zaki's worst he had 200 seizures an hour and It has been 106 days now since his last seizure. I get to say after almost a decade, I get to meet him... For the first time without all the seizure activity.

He had drugs... If you can imagine? Waiting 10 years to meet your kid. Yeah, It's real. It's absolutely real. I don't have any words to describe that.

Yeah, I don't know how you thank someone who has literally saved your son's life. Really, after the use the worry wears off. That we found ourselves in such good fortune. That we found the Stanley's. That we've found people who care, who grow this plant. You get angry that we couldn't have tried this 500.000 seizures ago. That no one even mentioned it as an option. We love our doctor, I love him, I feel like he is in the fight with us.

He signed for us, most doctors wouldn't. But he's never, even in all these years. Showed us the compassion that the Realm of caring has. Thank god we live in Colorado. But if we didn't... I would do whatever I needed to do to be able to provide this for my child. [Music... ] Thank you for watching.

Please visit: www.realmofcaring.com Special thanks to the bold parents of special needs children. Who have stopped at nothing and exhausted all recources to save their kids! From all of us at the Realm, it has been our highest honor to play a role in these incredible stories and to wittness your love and dedication!.

Ich habe MRKH. (w/ english subtitles)

Hi My Name is Erika, i'm 19 Years old and i have MRKH- Syndrome. MRKH- What is it? For those who already know about MRKH Syndrome: Dont worry, this will not be a whining- video…

By: LadyHangaku
Charlotte Figi and Zaki Jackson s Journey Treating Dravet & Doose Syndrome…

Charlotte Figi & Zaki Jackson's journey Treating Dravet & Doose Syndrome with cannabis oil. Doctor Alan shackelford - Dr. Schakelford: I'm doctor Alan Shackelford. What you…

By: Pwits
Check out the MAGIC Foundation

For our first video, I want to focus on the MAGIC foundation. Huntley's Adventures The MAGIC foundation is the largest North American, growth-awareness, non-profit organization.…

By: Huntley's Adventures
Connor's story - a Genetic Disorders UK / Jeans for Genes Day film

Morning. Hello. Oh, that’s nice. Hello. My name is Connor and I’m 15 and I’m in many ways the same as everyone else.But there is one big thing about me. I’ve got Duchenne Muscular Dystrophy.…

By: JeansforGenesUK
Eating Disorders & Genetics! w/ Alex Dainis

- Hey everybody, I have a very special guest. Alex Dainis is with me and she is a geneticist, correct? - I am, I am getting my PhD in Genetics at Stanford, at the moment. - Oh, so see,…

By: Kati Morton